NIHR CLAHRC NWL will be supporting five new research driven improvement projects in NWL

The projects aim to make a difference to the provision of care to patients and carers and spans themes of breathlessness, early years, frailty and mental and physical wellbeing.

The five Research Driven Improvement Projects are:

  • Non- Invasive Ventilation – Improving outcomes and patient experience with understanding – Imperial College Healthcare NHS Trust – Dr Susannah Bloch

The aim of this project is to improve the quality of care for patients with acute chronic obstructive pulmonary disease (COPD) requiring Non-invasive ventilation (NIV) by improving patient/carer experience of NIV through understanding and engagement; and by improving staff awareness of patient perspective through a holistic approach to NIV education.

Acute exacerbation of COPD also known as acute exacerbations of chronic bronchitis (AECB) is a sudden worsening of COPD symptoms (shortness of breath, quantity and colour of phlegm) that typically lasts for several days. It may be triggered by an infection with bacteria or viruses or by environmental pollutants ( 2016).

A primary driver of the project is the development and implementation of an NIV bundle to ensure excellent NIV delivery and improve outcomes. The proposed changes use Experience Based Co Design (EBCD); collaboration between patients/carers and professionals to enhance service delivery. With the collaboration of patients, carers and professionals, the project will identify important factors for patients/carers and design education programmes for staff and patients as well as improve the delivery of patient information. The project will produce a holistic service with patient experience at its centre. The NIV bundle will secure the sustainability of this approach.


  • Time critical treatment for hand and wrist fractures: the virtual fracture clinic – Imperial College Healthcare NHS Trust – Mr Raymond Anakwe

 This project aims to improve the treatment for patients with hand and wrist fractures at Imperial College NHS Trust. The number of patients with these injuries continues to increase. There needs to be new approaches to deal with this. By re-examining traditional processes and clinic structures to make them more patient centred and by focussing on patient and clinician education, we believe we can improve the patient experience and deliver safe, effective, timely, patient centred and efficient care.

The project proposes to run a virtual fracture clinic to triage all patients appropriately and in a timely way to receive the best treatment. Patients will be followed up with personal contact used as an opportunity for education and to obtain feedback.  An online patient and clinician education resource will be developed as well as an education programme for the emergency departments. Existing team members will be involved in the learning to maximise corporate learning and memory. We will develop an education programme for our emergency departments.


  • Better information to improve the parent experience of neonatal care – Chelsea and Westminster Hospital NHS Foundation Trust – Dr Chris Gale

 Neonatal units in hospitals specialise in the care of babies born early, with low weight or who have a medical condition that requires specialised treatment. Neonatal literally means ‘new born’ (Bliss: 2016).

The project aims to accomplish:

  • Empowered, satisfied parents of babies receiving neonatal care.
  • Parents who are well informed and involved in their baby’s clinical data.
  • A secondary aim is to improve the quality of the electronic health record data collected as part of routine clinical care.

Previous work in the USA has shown that providing parents with daily clinical updates drawn straight from electronic health records results in improved parent satisfaction; specifically, better involvement and communication. The project will develop this intervention in partnership with parents, patients, a charity and a commercial partner to make it parent centred and relevant for the NHS.


  • Implementation of the IBD registry database: acceptability, safety and effectiveness in specialised gastroenterology outpatient service – Northwest London Hospitals NHS Trust – Dr Naila Arebi

This project aims to design a model of care for monitoring Inflammatory Bowel Disease (IBD) based on disease state.

 Inflammatory bowel disease (IBD) is a term mainly used to describe two conditions, ulcerative colitis and Crohn’s disease. Both ulcerative colitis and Crohn’s disease are long-term (chronic) conditions that involve inflammation of the gut (gastrointestinal tract). Ulcerative colitis only affects the colon (large intestine), while Crohn’s disease can affect all of the digestive system, from the mouth to the anus (NHS Choices: 2016)

Remission can be monitored out of hospital releasing clinic capacity in IBD clinics for active complex disease needing direct expert care and other gastroenterology clinics for urgent non-IBD conditions e.g. suspected cancer.  The model will link primary and secondary care and readily translate to other disciplines and centres.

The project will adopt the IBD database to deliver care, identify & register all IBD patients attending clinics, record disease as remission or active/complex, tabor delivery of care to patient needs, preference and abilities, record & review outcomes to adjust care model to include patient feedback and experience and share improvement methods with other department and organisations.


  • SHINE2 improving physical health care for people with severe mental health problems – Central and North West London NHS Foundation Trust – Dr John Green

 SHINE2 aims to improve the collection, communication and recording of physical health information about patients across the mental health pathway. The aim is to provide patients with personalised information about what their health risk factors are and how they can reduce them and ensure they have the help necessary to achieve that.

SHINE1 has been running with inpatients. It has reduced paperwork and improved recording of physical health information. SHINE1 developed a co-produced health booklet that explains key health domains, gives an individual risk profile and signposts to evidence based behavioural and clinical interventions. SHINE2 wish to extend this across the whole mental healthcare pathway.

Congratulations to the selected candidates.