The London-wide Brian Turley Patient and Carer Involvement Awards took place at the NIHR CLAHRC North West London Spring Collaborative Learning Event on the 26th April 2018. The awards, presented by Simon Denegri (below centre), National Director for Patients and Public in Health Research, celebrate and promote patient and carer involvement in healthcare research and improvement.
“Once again, it is been a pleasure to read about all of the projects and my sense is the quality of the applications overall is even better than last year which is heartening. Lots of useful tips and the common theme seems to be, we should have started involving patients and carers earlier. Very useful!”
– Brian Turley Award Judge Jocelyn Cornwell, Director Point of Care Foundation
The Awards were created in 2017 by NIHR CLAHRC Northwest London in memory of Brian Turley a dedicated and committed patient advocate and disability rights campaigner who worked closely on a project that developed the ‘My Medication Passport. The awards aim to sustain Brian’s values and commitment to partnerships between professionals and patients, carers and the public in research and service improvement work across the Capital.
“It was an honour for me to be involved in this way. I found the detail of the submissions very interesting and informative. It was reassuring to see so much good work being done”
- Brian Turley Award Judge
Iain Baxter, Service User
“The nominations where varied and interesting projects, the inclusion of different stakeholders was very good…. As a first time judge I felt that this was an opportunity to learn and develop a new skill”
– Brian Turley Award Judge Charity Gondwe, Carer
Patient / Service user / Carer with influence Award
Sophia Kotzamanis – a parent representative for BUDS [Better Use of data to improve parent satisfaction), an initiative aiming to improve the experience parents have when their baby is admitted to a neonatal unit.
Team working with patients, service users, carers, families and communities Award
St Mark’s Hospital Patient-Centred Inflammatory Bowel Disease (IBD) Care Model at London Northwest Healthcare NHS Trust – The team involved patients and the public in a programmes to improve outpatient monitoring for patients with Inflammatory Bowel Disease (IBD) by addressing the mismatch between ‘need’ and ‘access’ to services.
Early Career Researcher/PhD student/Service User Researcher/ Fellow Award
Stuart Green, Public Health Research Fellow based at Imperial College London – Stuart was an integral part of a quality improvement initiative within a mental health trust which aimed to improve cardiometabolic screening of patients through the introduction of a comprehensive physical health assessment.
The winners will be awarded with the opportunity to work with graphic artist Sandra Howgate to prepare a visual representation of their work to promote and share their story with others. Last year’s winners – the PREPARE team at Imperial College Healthcare NHS Trust – produced the impressive poster below.
Runners up for the awards were the Alcohol Research Team at CLAHRC South London – Tackling the stigma of alcoholism (Team working with patients, service users, carers, families and communities Award), Emma Dunphy – designing a website for people recovering from knee surgery (Early career researcher/PhD student/service userresearcher/ fellow Award) and Robin Lomas UCL – Impact of Welfare advice in GP practices (patient/service user/carer with influence Award).
Each CLAHRC convened a panel of judges including senior researchers, early career researchers and members of the public and patients to consider the nominations and supporting evidence provided by entrants. In all cases they were impressed by the sheer variety of work in research and service improvement going on across the three CLAHRCs, and the uniformly high standard of entries.
“Seeing experience and involvement embraced and championed is so fantastic. Working in this way is the future of healthcare; we need to embrace partnership working. Patients are part of the solution”– Brian Turley Award Judge Ellie Wharton, Project Manager
“As a newcomer to CLAHRC, coming from a social science research context, it has been an interesting and illuminating experience to be a judge for the Brian Turley Awards”– Brian Turley Award Judge Sam Miles, Researcher
We have shared detailed feedback with all entrants and strongly encouraged them to seek channels to share their involvements stories through newsletters, websites and in journals.