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NIHR CLAHRC Northwest London Blog

Collaboration for Leadership in Applied Health Research and Care

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Broken Silence

A Mother of a 9 Year Old with Sickle Cell Tells Her Son’s Story

  “Jacob has been living with Sickle Cell for almost 10 years, and all I have found is that everything is a struggle. He’s had some terrible experiences – at what are supposed to be some of the best hospitals... Continue Reading →

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First Nationwide Sickle Cell Survey Emphasises Awareness as Key to Healthcare Improvement

On April 20th, the results from the first patient experience survey of people living with Sickle Cell Disease (SCD) across England were published. NIHR CLAHRC NWL, in partnership with the Sickle Cell Society, commissioned the development and implementation of the survey... Continue Reading →

Largest Sickle Cell Disease Patient Reported Experience Measure Concludes with over 720 Responses

Sickle Cell Disease has been an area of high priority for the National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care Northwest London (NIHR CLAHRC NWL) for many years. CLAHRC NWL has funded a multitude... Continue Reading →

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