RCN Congress 2016 Debate Points Echoes Sickle Cell Disease PREM Findings and Draws Attention of BBC

On the 18th of June 2016, Dominic Howell released an article on BBC News Health about the need for better training for nurses on sickle cell disease. The article talks about the Royal College of Nursing’s description of the ‘poor...

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A Mother of a 9 Year Old with Sickle Cell Tells Her Son’s Story

  “Jacob has been living with Sickle Cell for almost 10 years, and all I have found is that everything is a struggle. He’s had some terrible experiences – at what are supposed to be some of the best hospitals...

First Nationwide Sickle Cell Survey Emphasises Awareness as Key to Healthcare Improvement

On April 20th, the results from the first patient experience survey of people living with Sickle Cell Disease (SCD) across England were published. NIHR CLAHRC NWL, in partnership with the Sickle Cell Society, commissioned the development and implementation of the survey...

Largest Sickle Cell Disease Patient Reported Experience Measure Concludes with over 720 Responses

Sickle Cell Disease has been an area of high priority for the National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care Northwest London (NIHR CLAHRC NWL) for many years. CLAHRC NWL has funded a multitude...