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NIHR CLAHRC Northwest London Blog

Collaboration for Leadership in Applied Health Research and Care

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My Medication Passport

Prof Bryony Dean-Franklin Awarded nearly 93k Pharmacy Research UK Grant

@BryonyDF awarded approx 93k @PharmResUK grant to investigate the use of patient-held information about medication (PHIMed) to support medicines optimization over 18 months.

March Newsletter 2017: Nutrition and Exercise

Many of the improvement programmes at CLAHRC Northwest London centre around the principles of preventative medicine and care. As we all know the most basic preventative care is to maintain a healthy eating and exercise regime. Current projects that make... Continue Reading →

A Mother of a 9 Year Old with Sickle Cell Tells Her Son’s Story

  “Jacob has been living with Sickle Cell for almost 10 years, and all I have found is that everything is a struggle. He’s had some terrible experiences – at what are supposed to be some of the best hospitals... Continue Reading →

First Nationwide Sickle Cell Survey Emphasises Awareness as Key to Healthcare Improvement

On April 20th, the results from the first patient experience survey of people living with Sickle Cell Disease (SCD) across England were published. NIHR CLAHRC NWL, in partnership with the Sickle Cell Society, commissioned the development and implementation of the survey... Continue Reading →

My Medication Passport

My Medication Passport is a patient-held record of medicines, funded by the NIHR CLAHRC NWL, designed by patients, for patients. It is available as a pocket-sized booklet and as a smartphone app designed to help patients to make a record of their own medicines list and any medication changes in order to improve communication about medicines between patients, carers and healthcare professionals. Follow the positive impact the MMP has had on patient and carers lives.

Largest Sickle Cell Disease Patient Reported Experience Measure Concludes with over 720 Responses

Sickle Cell Disease has been an area of high priority for the National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care Northwest London (NIHR CLAHRC NWL) for many years. CLAHRC NWL has funded a multitude... Continue Reading →

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