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NIHR CLAHRC Northwest London Blog

Collaboration for Leadership in Applied Health Research and Care

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Sickle Cell

Sickle Cell Infographic Scoops National Award

Sickle Cell infographic created in collaboration by Picker, The Sickle Cell Society and NIHR CLAHRC Northwest London has won a national award.

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Spotlight on CLAHRC NWL in Imperial College London’s Departmental eMagazine

Spotlight on CLAHRC NWL in Imperial College London's Department of Primary Care and Public Health eMagazine.

Patient And CLAHRC NWL Fellow Chosen To Teach Master of Public Health Students At Imperial College On ‘Improving Health Services’ Module For The First Time

Cherelle Augustine is a CLAHRC NWL Improvement Leader Fellow, cohort 2015. Cherelle is a Patient Ambassador for sickle cell disease. In 2005 Cherelle, at the age of 19, co-founded a charitable organisation called Broken Silence in loving memory of a friend who... Continue Reading →

RCN Congress 2016 Debate Points Echoes Sickle Cell Disease PREM Findings and Draws Attention of BBC

On the 18th of June 2016, Dominic Howell released an article on BBC News Health about the need for better training for nurses on sickle cell disease. The article talks about the Royal College of Nursing’s description of the ‘poor... Continue Reading →

A Mother of a 9 Year Old with Sickle Cell Tells Her Son’s Story

  “Jacob has been living with Sickle Cell for almost 10 years, and all I have found is that everything is a struggle. He’s had some terrible experiences – at what are supposed to be some of the best hospitals... Continue Reading →

First Nationwide Sickle Cell Survey Emphasises Awareness as Key to Healthcare Improvement

On April 20th, the results from the first patient experience survey of people living with Sickle Cell Disease (SCD) across England were published. NIHR CLAHRC NWL, in partnership with the Sickle Cell Society, commissioned the development and implementation of the survey... Continue Reading →

Largest Sickle Cell Disease Patient Reported Experience Measure Concludes with over 720 Responses

Sickle Cell Disease has been an area of high priority for the National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care Northwest London (NIHR CLAHRC NWL) for many years. CLAHRC NWL has funded a multitude... Continue Reading →

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